Plagiocephaly. (9 weeks)
My poor boy has a crooked head.
It wasn’t molded at birth, but it got increasingly funny shaped as he grew. He was jammed in the womb at an odd angle with his arm stuck over his head, and he was born in that position. Apparently that pressure can cause the head to start off growing unevenly.
I’m so annoyed at everything I read about plagiocephaly online. Henry’s head is not misshapen from laying in seats and cribs for too long. We don’t even own a crib, swing, bucket seat, or infant stroller! We have a bouncy seat that he sits in for maybe 30 minutes total per day. Otherwise he’s being held or upright in the mei tai carrier on my chest. He naps in the mei tai too, never in bed flat on his back. So his head issues are definitely from positioning in the womb.
We’ve been seeing a craniosacral therapist. Henry LOVES her. It seems kind of like witch craft, but it has made a huge difference in his head shape after two sessions!
Unfortunately his ears are misaligned, which means that his facial features may grow crooked, like different sized eye sockets and a crooked nose. So he needs to wear one of those baby helmets to correct it.
I kind of want to cry thinking of it. On one hand the helmets are pretty funny and cute. On the other hand, my poor boy will be stuck in a foam helmet 23 hours a day. He’s already such a sweaty boy, his head sweats a lot! I can’t imagine how gross the helmet will be.
He has to see a neurosurgeon first. The neurosurgeon doesn’t assess babies for plagiocephaly until four months. That’s the beginning of December. Henry has his next check up at the pediatrician on the 5th of December and he will write the neurosurgeon referral then.
The pediatrician said there’s a chance his head could even out on its own before then if we’re lucky, but likely not. We’re continuing to do the craniosacral therapy, and I might add in chiropractic too. Henry has slight torticollis from his womb positioning too, which can go along with plagiocephaly.
The important thing to me is that this is all cosmetic. Plagiocephaly doesn’t require surgery or have any impact on the brain. It just makes his head and face look wonky, but those should be fine once he has the helmet for a few months. Right now his face looks totally normal, and you can’t tell his ears are crooked unless you look at them from above.
In the long run this isn’t that big of a deal, so I’m trying not to freak out. I keep thinking of the other mamas I know who have kids with serious special needs. They are kind of my heroes. (Including a couple of you all on here!)
Here is a before and after shot. The top is before therapy, and the second is after two sessions. (Ignore the fact that the second picture is probably the worst quality picture I’ve ever taken.)
See? While his head shape is WAY better, it’s still lopsided if you stare it by looking down at the top of his head. The CST (craniosacral therapist) said that the membranes running along the back of his head are too tight, causing the skull plates to pull to one side.
Well despite all of the head woes, Henry is still super adorable and growing like CRAZY.
At his two month check up on Monday he was almost 14 pounds. He’s just about doubled his birth weight.
He was in the 95th percentile for weight, 93rd percentile for height, and 80th percentile for head size. (His head is still growing at a steady rate, which is very important.)
According to his growth curve they predicted he would be 6 ft 2 or 6ft 3 and at least 200 pounds as an adult. He’s going to be a big man! Funny to imagine my sweet little buddy grown into a man. Can I just keep him as a snuggly baby forever?
Ada looks like she’s been in a battle. On the contrary she is just…Ada. You know.
I have so many more pictures, but no time to post them because my internet is super slow and I am really busy with my photography business, homeschooling, baby boy, and farming stuff.
If you don’t already, you can follow me on Instagram. I post tons of pictures there, daily. My screen name is Pepper44.
Things are great here. I am so freaking happy. Yet at the same time, I still feel like kids are missing. Halp! I must be crazy. ;)